When I first offered to write this book, I had no idea what kind of response I would get…and so I was perhaps a bit surprised when the first offer to share I got came from not a person but an organization that had created a fundraiser for a person. But, hey, okay, whatever. There … More Lyme Disease: Stories From the Front Lines of an Epidemic – Elizabeth C.
So September is Suicide Prevention Month. And people keep asking me to share Suicide memes. Sorry, no. There were two successful and two failed suicides in my circle in the past five years. Another failed suicide lives in my blood family. I was one of the failed suicides. I am also … More Why I Don’t Share Suicide Prevention Memes
(In her own words and with all relevant permissions) My name is Maggie R. I currently live in Maryland. I am 28 years old and was first diagnosed at 16. I currently live with mild chronic Lyme disease. I was 16 years old and it was the summer between my junior and senior year of … More Lyme Disease: Stories From the Front Lines of An Epidemic – Maggie R.
This person insists upon not being named here. Prefers that I not even use any gender pronouns. This person has perhaps legitimate concerns about how posting any part of their story might impact their treatment and life at this juncture. So here is their story in their own words. ANONYMOUS – A FAILED SUICIDE On … More Lyme Disease: Stories From the Front Lines of An Epidemic – Anonymous
In her own words. (With permission.) ***** Debbie F. LD’s slow but steady ride in my body I was just diagnosed with Lyme Disease after 30 years of symptoms. When I was in 10th grade, just 15 years old, I noticed a round rash on my right arm. I went to the doctor and was … More Lyme Disease: Stories From the Front Lines of An Epidemic –Debbie F
Here is another story written in the person’s own words, once again used with permission. Tonight as I watch the Olympic Games opening ceremonies, I am reminded that not all warriors get medals, not all fights are televised, and that the most worthy people are often those you have never heard of. ***** My … More Lyme Disease: Stories From the Front Lines of An Epidemic – Dawn L.
This was written in May of this year (2016) as a late addition to the book I was still pretending to write. Like many people with Lyme, Steve developed first leaky gut syndrome, and then the cataclysmic allergies that tend to go with that. It’s partially the disease and partially the heavy load of oral … More Lyme Disease: Stories From the Front Lines of An Epidemic – Steve
Dear friends, I learned a hard lesson today. That lesson is that I cannot be the person I wanted to be. 20 plus years ago I was bitten by a tick. I came down with Rocky Mountain Spotted Fever and I spent some time in a hospital. For the next 17 years I was subject … More Lyme Disease: Stories From the Front Lines of An Epidemic – Author’s Note
Almost three years ago now, I started research for a book called Lyme Disease: Stories from the Front Line of An Epidemic. I started the book because I have Lyme Disease myself. Misunderstood, underfunded and not insurable, Lyme Disease is an orphan disease that has become something of a controversy of our age. Patients of … More Lyme Disease: Stories From the Front Lines of An Epidemic – Intro
The beginnings were mundane enough. One day, I just could no longer put cheese on my burgers. Cheese made me feel awful. Sweaty, hot, nervous, and itchy. Sometimes it made my breath short and my throat itchy. So I just quit asking for cheese on anything. I missed it, sure, but the cost was not … More A Slice of the Anaphylaxis Life